Alices Way

Chronology disease

That adorable smile belongs to Alicia. Unfortunately, Alicia fell ill with leukemia in 2019 and lost the battle with blood cancer. In November 2019, her body, tortured by the months of struggle and agonizing chemotherapy, could no longer resist and an infection developed into blood poisoning, from which she ultimately died. Alicia was only 33 years old.

I was the lucky one who was able to call Alicia his wife and accompany her for part of her life. I'm Benedikt and in 2014 I met Alicia in Colombia during a semester abroad. Since the first day I arrived we have spent most of our time together and from then on she never left my side. In 2016 she left everything behind in her home country of Ecuador to live with me here in Germany. Unforgettable, emotional and beautiful moments followed, culminating in our wedding in June 2017.

In April 2019 we suddenly received the devastating news that Alicia's initially harmless symptoms such as bruises, cough and fatigue were due to leukemia. Leukemia - a word that we thought so far from our reality of life, a disease that is associated with great horror and fear. How do you deal with such a diagnosis? Of course, many tears have flown and there have been sleepless nights full of worry. Nevertheless, I was able to learn so much from Alicia during this time: how strong a person can deal with such a shock diagnosis and accept the fight against the disease without complaining and how joy can arise from fear. That Alicia never lost heart despite all the pain and setbacks, approached the day with a smile and kept asking herself the question of what is really important in life impressed me every day. The fact that Alicia could always see something positive about the impending loss of her own life and that she seemed to find strength in it was an incredible inspiration for me. It shows that even the most difficult phases of our life can bring out the best in us.

Alicia still had big dreams from which she drew strength for the lengthy and painful chemotherapy. At the beginning, due to the progress of medicine, doctors spoke of an 80 percent chance of survival. Although Acute lymphatic leukemia (ALL) is a particularly aggressive form of blood cancer, it also responds particularly well to chemotherapy. 80% meant hope: hope for a time without fear and pain, hope to pursue one's dreams and desires, hope for a life rich in experiences and moments of happiness and above all hope for a healthy future. With 80% hope, the disease even lost some of its fright and released a lot of strength.

But for many patients in this world the chances are not so good. One can only imagine how unbearable the pain must be, how difficult it must be to find motivation, and how stressful the situation must be for the patient and family when the chance of a new life is 30%, 20% or only 10%. Alicia was very sad to learn that the chances in South America and her home country Ecuador are so slim. Most of all, she was deeply grateful that she was receiving the best medical care and that she could so confidently believe that her hopes would be fulfilled. It was therefore a special concern of hers and a deepest wish to become active for leukemia patients in South America after her recovery: to increase the chances that every person in this world can be cured of leukemia and can draw hope for a new life.  

Now Alicia has gone to a better place, but her dreams and desires have remained. They have now become mine and mean motivation and inspiration for me - to take action for all patients suffering from leukemia! 

"Ride for ALL" means ride for ALL people!

Let's get a little closer to Alicia's dream ... give more hope,
enable more second lives ....

April 2019

First symptoms and blood test

The first harmless symptoms such as cough, persistent cold, tiredness, noticeably many bruises - visit doctor and take a blood sample for a laboratory test

Hospital visit
29. / 30.04.2019

Suspicion: leukemia

Call from doctor, admission to the hospital with suspected leukemia - bone marrow puncture for analysis

03.05.2019

Start of chemotherapy

Confirmation of leukemia, diagnosis: acute lymphatic leukemia (ALL), start of chemotherapy and start of hair loss

11. / 14.07.2019

Registrations for stem cell donation in Altenbeken with the HSG Altenbeken-Buke (803 registrations) and donation amount of 14.150 €

26.07.2019

Wedding in church

A few hours of joy - our wedding in the church in Altenbeken

02.08.2019

Provisional discharge

First discharge from the hospital after almost 100 days of therapy

Shaolin Alicia
06.08.2019

External donor search

Presentation at the University Clinic Göttingen for a preliminary discussion on stem cell donation, initiation of the search for an external donor

19.08.2019

Continuation of chemotherapy

Re-admitted to hospital for continued chemotherapy

25.08.2019

Third registration campaign

Radio Hochstift holiday finals - DKMS registration campaign (132 registrations)

02.09.2019

Re-admission to hospital

Admission to hospital due to pain and tendency to bleed - antibiotic therapy and continued chemotherapy

04.09.2019

Milestone reached: cancer-free!

The result of the last puncture shows: no more leukemia cells found - chemotherapy works! Successful search for stem cell donors in the event of a necessary stem cell transplant!

30.09.2019

Maintenance therapy: continuation chemo

Start of the next chemotherapy block and further inpatient and outpatient stays in the hospital

October 2019

A bit of normality

Alicia is enjoying relaxing at home outside of the clinic more and more often - fulfilling the wish to go to the beach and see the ocean again

24.11.2019

Out of the serene sky

Sudden worsening of fever and low blood pressure - admission to intensive care for infection-related sepsis

25.11.2019:

Artificial coma

Put into an artificial coma - the last words could only be transmitted on paper because of the intubation

27.11.2019

In a better place

Alicia's heart stops beating after a long and persistent struggle.

April 2019

First symptoms and blood test

The first harmless symptoms such as cough, persistent cold, tiredness, a noticeable number of bruises - visit of our doctor and take a blood sample for a laboratory test

Hospital visit
29. / 30.04.2019

Suspicion: leukemia

Call of the family doctor, admission to the hospital with suspected leukemia - bone marrow puncture for analysis

03.05.2019

Start of chemotherapy

Confirmation of leukemia, diagnosis: acute lymphatic leukemia (ALL), start of chemotherapy and start of hair loss

11. / 14.07.2019

Registrations for stem cell donation in Altenbeken with the HSG Altenbeken-Buke (803 registrations) and donation amount of 14.150 €

26.07.2019

Wedding in church

Short-term release from hospital for our church wedding in Altenbeken

02.08.2019

Provisional discharge

First discharge from the hospital after almost 100 days of therapy

Shaolin Alicia
06.08.2019

External donor search

Presentation at the University Clinic Göttingen for a preliminary discussion on stem cell donation, initiation of the search for an external donor

19.08.2019

Continuation of chemotherapy

Re-admitted to hospital for continued chemotherapy

25.08.2019

Third registration campaign

Radio Hochstift holiday finals - DKMS registration campaign (132 registrations)

02.09.2019

Re-admission to hospital

Admission to hospital due to pain and tendency to bleed - antibiotic therapy and continued chemotherapy

04.09.2019

Milestone reached: cancer-free!

The result of the last puncture shows: no more leukemia cells found - chemotherapy works! Successful search for stem cell donors in the event of a necessary stem cell transplant!

30.09.2019

Maintenance therapy: continuation chemo

Start of the next chemotherapy block and further inpatient and outpatient stays in the hospital

October 2019

A bit of normality

Alicia is increasingly enjoying relaxation at home outside of the clinic - fulfilling the wish to go to the beach and see the sea again

24.11.2019

Out of the serene sky

Sudden worsening with fever and low blood pressure - ICU admission for infection-related sepsis / blood poisoning

25.11.2019:

Artificial coma

Put into an artificial coma - the last words could only be transmitted on paper because of the intubation

27.11.2019

In a better place

Alicia's heart stops beating after a long and persistent struggle.

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